LND Famiglie Italiane ONLUS
The Association of Italian families involved in the fight against the Lesch-Nyhan
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Lesch-Nyhan Syndrome
Lesch-Nyhan Syndrome is a very rare disease that has severe implications on affected people and their families life.
Lesch-Nyhan Syndrome is a very rare disease that has severe implications on affected people and their families life. Medical care, daily management and rehabilitation need particular knowledge and strategies, otherwise patients and caregivers’ lives become really “impossible”. Since the number of cases is limited and information is scarce, this web site, edited by families, is intended to be a means of communication that can overcome national frontiers and the barrier of the different languages, and allows for the circulation of experiences, news, instruments, meeting dates and possible therapeutical news..
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Initiatives
A challenge within the challenge.
Give the GO, with this extraordinary event, to the LND European Federation.  

An opportunity for all participants and for those who love the Tor Des Geants to share dreams The ingredients of the challenge are all there: the...

The fairy tale book “Prince Michele”
Rare disease day 2014 Join together for Better Care The no-profit Association “LND Italian Families” (LND Famiglie Italiane Onlus) will celebrate the Rare Disease Day in Saronno presenting the fairy tale book “Prince Michele” ("Il Principe...
THE ORIGINAL AND QUEEN OF THE RACES
Federico, on Friday August the 30th, the day his 56th birthday, will be at 16:30 at the starting line of 11th Ultra-Trail du Mont-Blanc (UTMB)edition : called “the race of all the superlatives” since the first edition, it consists in the complete tour...
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Latest News
[ 1st March 2014 ]
Rare disease day 2014
Join together for Better Care The no-profit Association “LND Italian Families” (LND Famiglie Italiane Onlus) will celebrate the Rare Disease Day in Saronno presenting the fairy tale book “Prince Michele” , a fable written by Michele, a young man affected by Lesch-Nyhan...
[ 15-16 June 2013 ]
International Meeting in Paris
On 15-16 June, French association Lesch-Nyhan Action organizes in the premises of Alliance Maladies Rares in Paris at the hospital Broussais, a meeting among doctors and families about the Lesch-Nyhan disease. During the meeting, our Association will have a space to...
[ Friday 28th September 2012 ]
First data on the research we have funded
56° National Meeting of the Italian Society of Biochemistry and Molecular Biology II Poster Session – Friday 28th September, 16:30 – 18:30 Vanna Micheli (Siena) "Preclinical testing of PNP inhibitors analogues of Immucillin-G for the therapy of Lesch-Nyhan disease: preliminary...
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