LND Famiglie Italiane ONLUS
The Association of Italian families involved
in the fight against the Lesch-Nyhan
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  PRESENTATION

People with Lesch-Nyan syndrome are in most cases very sociable persons and they are able to build strong relations with people around them. These characteristics are not always fully developed in today's social contexts.
Families with children or grown-ups who carry the syndrome have very special needs, often different from those taken into care in the usual social services projects, planned for people with more common disabilities.

Our Association promotes real integration for these wonderful people, through its commitment in raising awareness and in working with public and private sector health and social assistance agencies.
Their life is only possible through our joint effort in using all the resources in our territories and in overcoming prejudices and lack of information that are still associated with this condition.
The goals of the Association are more thoroughly explained in our Charter. It is possible to have access to it by clicking on the Charter icon: as in all ONLUS's, democracy and eligibility of every member to all the positions are key principles in the Association.
To be part of the Association is for the families a way to communicate and to come out of the isolation that even the sheer rarity of the symptoms may induce. For volunteers, it is a way to increase families potential, to help raise awareness on the condition and to support initiatives.

We wish that people with Lesch-Nyan may remain very few, but we also hope that members of the Association may become many and very active.
All members will be able to find a meeting point in the website, through the registered members area; in the noticeboard they will find proceedings of the assemblies so as to always be present to the life of the Association, even when scattered in different parts of the country.

 
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