LND Famiglie Italiane ONLUS
The Association of Italian families involved
in the fight against the Lesch-Nyhan
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100 years of running [ 2017, from 10 to 16 of September ]



Tor des Geants 2017, the hardest and most fascinating endurance trail running in the world, is back from 10 to 16 of September. The race is 210 miles, to be completed in 150 hours, with an altitude range of 82.000 feet, thru the highest peaks in Europe.

This will be for us a special edition because our supporters Federico, a 60 year-old employee of Lippert Components (LCI), and Luca, a 40 year-old fireman, decided to participate with an initiative named “100 years of running” in order to raise funds for a research program on Lesch-Nyhan sindrome. Their initiative has already found a great sponsor: LCI, the American company that recently acquired Federico’s company, Sessa Klein SpA. LCI will donate $5,000 US dollars and will cover about one fourth of the costs of a research program on this genetic rare disease. This is a marvelous gift that does not surprise Federico because Jason Lippert, LCI CEO, promotes not only business growth and profitability, but considers those in need in the communities LCI serves equally as important. He encourages all LCI employees to engage everybody in the company toward their community initiatives. In 2017, LCI pledged to give back 100.000 hours in service to the communities in which they live!

We are therefore grateful that Michilah Grimes, LCI Director of Philanthropy, has embraced our motto “Rare does not mean alone” by not only granting the donation but also by promoting fund-raising among the 9.000+ LCI employees. We will give all of LCI employees, by following the "3D - GPS live" of the race, the opportunity to make a small donation for each mile that the team “100 years of running” will run.
Our charitable association is really pleased to see how step by step ( … and even running) the dream of gathering friends, sponsors and researchers of different nations becomes true. Together, hopefully soon, we will grant our special boys the better life they deserve. For this we wish to say THANKS to the race organization, to the runners, to the sponsors and to whoever will decide, by contributing, to become part of this challenge.


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