Federico keep going … and participate in the Tor Des Geants Endurance Trail
Federico : racing again for Lesch-Nyhan fundraising
After the 2011 great adventure during Gran Trail Valdigne 100 km trail, a full success not only as a personal sport result but especially as a fruitful fundraising (above 16.000.00 €), I decided to try again in...
The meeting is mainly addressed to doctors and specialists taking care of persons affected by Lesch-Nyhan Syndrome; no registry is available for this disorder in Italy, nor have any therapeutic protocol or guideline been developed . Psychological,...