LND Famiglie Italiane ONLUS
The Association of Italian families involved in the fight against the Lesch-Nyhan
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Federico keep going … and participate in the Tor Des Geants Endurance Trail

Federico : racing again for Lesch-Nyhan fundraising



After the 2011 great adventure during Gran Trail Valdigne 100 km trail, a full success not only as a personal sport result but especially as a fruitful fundraising (above 16.000.00 €), I decided to try again in...
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Meeting on Lesch-Nyhan Syndrome [ Saturday, February 18th, 2012 ]
GENERAL INFORMATIONS

The meeting is mainly addressed to doctors and specialists taking care of persons affected by Lesch-Nyhan Syndrome; no registry is available for this disorder in Italy, nor have any therapeutic protocol or guideline been developed . Psychological,...
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