LND Famiglie Italiane ONLUS
The Association of Italian families involved
in the fight against the Lesch-Nyhan
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The Western States 100-mile Endurance Trail [ 2016 June 25th ]

On June 25th Federico brought along the LND emblem in USA at the Squaw Valley start of one of the most fascinating and important trail in the world: the Western States 100-mile Endurance Trail.

Federico not drawn for a bib,   supported, as a crew member, one...
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The research of the association on LNB: work in progress! First draft presented to the S.I.O.H.'s Me [ May 2016 ]
Living with Lesch-Nyhan: suggestions to manage Lesch-Nyhan behaviours more effectively.

1. Be aware that LN people do not want to cause damage to themselves, to property or to others
Examples:
- As soon as they meet, D. spits on the other person who...
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Let's race our dreams! [ Sunday 13 September 2015 ]
This year again the two associations LND Famiglie Italiane and Maratonabili have formed a team

(Federico Mazzuchi, Maurizio Monti e Franco Zomer) participating to the Tor des Geants 2015 with the motto “… let’s make the dreams run!”.
...
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Rare Disease Day 2015 [ 28 February 2015 ]
 



Day by day, hand in hand; live, dream and write with a rare disease



 


The non-profit Association “LND Italian Families” (LND Famiglie Italiane Onlus) will celebrate Rare Disease Day 2015 in Saronno by presenting...
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A challenge within the challenge. [ 7th-14th September 2014 ]
Give the GO, with this extraordinary event, to the LND European Federation.

 





An opportunity for all participants and for those who love the Tor Des Geants to share dreams

The ingredients of the challenge are all there: the...

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The fairy tale book “Prince Michele” [ the 1st March 2014 ]

Rare disease day 2014

Join together for Better Care

The no-profit Association “LND Italian Families” (LND Famiglie Italiane Onlus) will celebrate the Rare Disease Day in Saronno presenting the fairy tale book
“Prince Michele” ("Il Principe...
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May 10, 2013 meeting for Italian families
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I’m one of the Giants!! [ September 2012 ]



Dear Friends,

I did it, 141 hours and 11 minutes.

Hurrah, I’m one of the Giants!!

Finisher n° 361 of the “Tor Des Geants” out of 629 starters.

The desire not to let down my nephew...
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Meeting on Lesch-Nyhan Syndrome [ Saturday, February 18th, 2012 ]
GENERAL INFORMATIONS

The meeting is mainly addressed to doctors and specialists taking care of persons affected by Lesch-Nyhan Syndrome; no registry is available for this disorder in Italy, nor have any therapeutic protocol or guideline been developed . Psychological,...
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