LND Famiglie Italiane ONLUS
The Association of Italian families involved
in the fight against the Lesch-Nyhan
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International links
www.lesch-nyhan.org
Official Web Site of the Lesch-Nyhan Disease International Study Group
         
www.lesch-nyhan-action.org
Association Française Lesch-Nyhan Action Maladie Génétique

(French Association on Lesch-Nyhan)
www.pumpa.org.uk
Purine Metabolic Patients’ Association
www.lesch-nyhan.nl
Lesch-Nyhan van Jamie Schneider

(Dutch Site by Jamie Schneider)
www.asociacionlesch-nyhan.org.es
Asociaciòn del Sindrome Lesch-Nyhan Espana

(Spanish Association of Lesch-Nyhan syndrome)
www.lnd.se
Lesch-Nyhan Disease Sverige - Sweden
 
lndnet.ning.com
Lesch-Nyhan Disease Support Group
209.235.237.152/about_matheny_lesch_nyhan2.htm
Lesch-Nyhan Disease on Matheny Institute
 
Italian web sites
www.iss.it/cnmr
Istituto Superiore di Sanità - Centro Nazionale Malattie Rare

(Istituto Superiore di Sanità - National Center for Rare Diseases)
 
www.cndmr.it
Consulta Nazionale delle Malattie Rare

(National Commitee of Rare Diseases)
www.malattierarepiemonte.it
Rete Interregionale del Piemonte e della Valle d’Aosta sulle Malattie Rare

(Piemonte and Valle d’Aosta, Italy Network for Rare Diseases)
   
malattierare.marionegri.it
Regione Lombardia - Centro di Coordinamento della Rete Regionale per le Malattie Rare

(Region Lombardia, Italy - Coordination Centre of the Regional Network for Rare Diseases)
malattierare.regione.veneto.it/
Coordinamento Regionale per le Malattie Rare - Regione Veneto

(Rare Diseases Centre - Venetian Region - Italy)
 
malattierare.asplazio.it
Malattie Rare Lazio

(Rare Diseases Centre - Region Lazio - Italy)
www.birdfoundation.org
Istituto Mauro Baschirotto per le Malattie Rare

(Mauro Baschirotto Institute for Rare Diseases)
 
www.retemalattierare.it
Associazione Rete Malattie Rare

(Association Network for Rare Diseases)
www.osservatoriomalattierare.it
Osservatorio Malattie Rare

(Rare Diseases Observatory)
www.malattie-rare.org
Federazione Malattie Rare Infantili

(Infant Rare Diseases Federation)
www.uniamo.org
Federazione Italiane Malattie Rare

(Italian Federation for Rare Diseases)
 
www.aidweb.org
Portale Internazionale dei Lions sulle Malattie Rare

(International Lions Portal on Rare Diseases)
     
www.malattierare.sanitanews.it
Sanità News sulle Malattie Rare

(Health News on Rare Diseases)
www.infosalute.info
Portale di informazione su ospedali e professionisti della sanità

(Portal for Information on hospitals and health professionals)
 
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