LND Famiglie Italiane ONLUS
The Association of Italian families involved
in the fight against the Lesch-Nyhan
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I’m one of the Giants!! [ September 2012 ]






Dear Friends,

I did it, 141 hours and 11 minutes.

Hurrah, I’m one of the Giants!!

Finisher n° 361 of the “Tor Des Geants” out of 629 starters.

The desire not to let down my nephew Michele and the many other young people suffering from Lesch Nyhan desease who were following the contest live night and day on the web combined with the well known family stubbornness helped me overcome all difficulties.

Especially: lack of sleep – only 10 hours out of the 141 spent on the race and above all a nagging pain to the quadriceps of the left leg which suddenly and unexpectedly gave out on me 30 hours from arrival after having overworked it to support the right knee not in good conditions from the start.

It is hard to tell in a few lines how exhilarating, dramatic and unique this experience has been. A journey in a different dimension up to the best science fiction. A whole life in six days and six nights!

Joy, cold, rain, wind, breathtaking skies, astounding landscapes, never seen before dawns and sunsets, physical pain, fear, gratitude, exhilaration, emotion, disappointment, friendship...a mix of feelings partly already felt during my eventful life but never so concentrated!

Perhaps it is telling that during the last hours of race, one of the main reasons that spurred me on despite the leg was the awareness that, knowing myself, to make sure not to face such a monster again I absolutely had to see the end of it.

Well, 48 hours after the arrival, as I was undoing my suitcases, washing my clothes and putting away the objects the accompanied me during this adventure, I was flooded with an intense nostalgia that filled my eyes with tears and once again made me understand that what really counts in life is being able to face and beat such monsters! Now I am sure: I’ll do this again!!!

Finally, the main goal, giving visibility to Onlus LND Famiglie Italiane Association, has been achieved. Actually we went beyond our best expectations: the national news TG1, TG2, the local news TG3 Regionale, Sportweek magazine, the sports newspaper Gazzetta dello Sport, the bimonthly magazine Blue, the homepage of Tor Des Geants (http://www.tordesgeants.it/it/news/il-tdg-2012-grande-vetrina-nobili-cause ) talked about Lesch Nyan, Michele, the Association: a real success!

Now, If you too wanted to make a little effort and give a small actual contribution to our cause and help us fund a second scientific research at Siena University on this terrible rare illness, I would be so grateful.

Unfortunately, we either self-fund or, given the small number of patients....nobody acts! If you want to help us go to http://www.lesch-nyhan.eu/en/sostieni/offerta.php for your donation and add “...Federico... tames the Giants...” as reason for payment J

A big hug and thank you for following me and supporting us.

Federico



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