LND Famiglie Italiane ONLUS
The Association of Italian families involved
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The fairy tale book “Prince Michele” [ the 1st March 2014 ]




Rare disease day 2014

Join together for Better Care

The no-profit Association “LND Italian Families” (LND Famiglie Italiane Onlus) will celebrate the Rare Disease Day in Saronno presenting the fairy tale book
“Prince Michele” ("Il Principe Michele"), a fable written by Michele, a young man affected by Lesch-Nyhan Disease (LND).
The book was made possible thanks to the help of Elena, who was MICHELE’s HANDS, as she writes in the preface, but also his patient companion and listener.

Since for those who are affected by LND to “give a HAND” also means to hold your HANDS, to replace your HANDS….

During the presentation of the book, in the presence of the author and of young people affected by many pathologies, we will join hands remembering all the rare disease patients.

Attached the flier of the event


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