LND Famiglie Italiane ONLUS
The Association of Italian families involved
in the fight against the Lesch-Nyhan
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Rare Disease Day 2015 [ 28 February 2015 ]



 



Day by day, hand in hand; live, dream and write with a rare disease



 


The non-profit Association “LND Italian Families” (LND Famiglie Italiane Onlus) will celebrate Rare Disease Day 2015 in Saronno by presenting the fairy tale book “Prince Michele vs the Ogre Badabada", the second fable written by Michele, a young man affected by Lesch-Nyhan Disease (LND).

The book was made possible thanks to the help of Elena, who was Michele's hands, as she writes in the preface, but also his companion.


During the presentation of the book, in the presence of the author and of young people affected by many rare diseases, we will join hands for all those living with a rare disease.



The event programme is attached.


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